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My story with Rheumatoid Arthritis

I remember it so clearly, just like it was yesterday. It was early 1994; I was talking to an elderly woman in a bed next to me at Monash Medical Centre. I was very ill and would be diagnosed with chronic Rheumatoid Arthritis (RA) during my 14-day stay in hospital.

Despite 4 months of chronic pain, an initial poor diagnosis, and very poor support from a Rheumatologist in Canberra (where I lived at the time), I had not given up hope of making a full recovery. I said to the old woman, that I would make a full recovery, and that I would never give up until I achieved full health again. The old woman was cynical; she said ‘we will see’. I offered her my contact details they were declined.

Prior to entering hospital there were many things I could no longer do without assistance, for example, standing up from a seated position, putting on socks and shoes, and getting out of bed. I was staying at my mothers over Christmas, while I waited for a bed in hospital; one night everyone had gone bed and I was left sitting in a lounge chai faced with spending a night right there. It was confronting. Eventually my mothers partner, realised the light was still on and came to my aid.

I was 31, in the very prime of my life when I was diagnosed with Rheumatoid Arthritis. I had a great day job in a little Italian Café in Canberra, I had just started cycling the 20km round trip to work when I experienced the first symptoms of pain in my ankles. I worked three hours a day to pay the bills, which allowed me to explore and work on my passion as an artist / gold and silversmith. I graduated from Canberra School of Art in 1983.

In hospital I was introduced to hydrotherapy (warm water exercise) with the support of a (fantastic) physiotherapist. It was at this point that I started healing, in the water. In the physiotherapy department I learnt to lie down again, and to walk again. I remember in one session being assisted to lie down on my back. The tears flowed from the pain and the sheer shock of being horizontal again. For weeks I’d been sleeping propped up. My body had forgotten how to lie down. I never looked back.

I returned to Canberra a few weeks after my two-week stay at Monash. Always independent in thought and life, I was keen to continue my journey of recovery and recommence my life as an artist. I had the opportunity to attend physiotherapy and hydrotherapy in Canberra Hospital in Woden. Unfortunately the physiotherapist that assisted me there was not as positive as the physiotherapist at Monash. I was advised to accept that I had this disease, and choose a new career. She said that I would never be able to be a goldsmith again! How poor some treating medical professionals can be with their outlook. Why they continue to work in the profession with attitudes like that is beyond my understanding, as they’re doing a disservice to all the people they are trying to assist.

As a goldsmith, who makes contemporary statement jewellery, I became very concerned when the disease finally made it to the joints in my hands;  they were the last joints to be affected by the ravaging disease. Determined as I am though, I continued with my rehabilitation. At home each night on the sofa I would sit with a chopping board on my lap and squeeze and roll play dough, rebuilding the strength in my fingers, and preventing the finger curling you see with RA and improving my flexibility.

After three months as an outpatient at Woden Hospital in Canberra I was told that it was all over; that there were other people who needed to occupy the pool and physiotherapy department, that my support had come to an end. I was still weak and recovering. I had a long way to go, but the Canberra medical system was not set up to support public patients in the long-term at that time. I had lived in Canberra for 12 years; I studied at Canberra School of Art now part of the Australian National University. My friends were there. What could I do? There were no public access hydrotherapy pools in Canberra at the time, so I made the decision to continue on the road to good health, and moved back to Melbourne. In Melbourne I had access to several public warm water pools and attended a local pool three times a week to continue with my rehabilitation.

Today, I still do some of the exercises and stretches that I learnt at Monash Medical Centre 23 years ago, but mostly I swim about 1 kilometre twice a week. I also walk twice a day, and kayak on the weekend when I’m not in my studio.

I’ve achieved some great goals since being diagnosed, and continue to do so as I prepare for the Canadian Wilderness Artists Residency this July and August.

In 1999 I travelled to Ghana in West Africa for 6 weeks. To travel in West Africa it is necessary to be vaccinated against Yellow Fever and Typhoid. The Yellow Fever Vaccine is a live vaccine and for 5 weeks prior to having the Vaccine I was required to cease taking the disease modifying anti-rheumatic medication that keeps me in remission. It was a shock when the week before I was due to depart my knee blew up like a balloon. Fortunately I have an excellent Rheumatologist who assisted me at short notice, which allowed me to start my six-week adventure as planned. Admittedly with a limp for the first week or so and then it settled down and I was back to normal as the medication began to assist me again.

Another and very important experience for me was in 2002 when I travelled to Mali in West Africa. Part of that experience was a trek 5 days through the Dogon escarpment. I was living a dream I had for 21 years. It was not an easy journey; I hadn’t declared to anyone that I had RA for fear of being denied a place. I’d trained in the gym for months prior to leaving, but nothing can prepare you for the extreme heat when you’re actually out there. Getting through the first day wasn’t the hardest, but it was a very emotional experience. Fortunately we’d trek early in the day and late in the day when some of the force had gone out of the sun. I think we are all truly capable of achieving our goals no matter how much is stacked against us. Unless I told you I had Rheumatoid Arthritis, I don’t believe that you would know. I have a hidden disability.

I never stopped goldsmithing during my rehabilitation. When I was ready to get back to work I received a grant for a year to assist me with my business plan to grow my small business. I had the financial support to continue with my goal towards making a living as a practicing artist.

Today I still work a day job. When I was ready to rejoin the work force I decided to make a difference and give back to the system that had been both kind and unkind to me as I pursued full health, I became an advocate for people with disability. I have a natural ability, standing up for my rights that I hope to inspire and assist others with.

The body is truly amazing. My feet showed signs of bone degeneration in x-rays from the early years of the disease, but now year’s later similar x-rays show no signs of degeneration at all.

Rather than dwell on the suffering I endured as the disease spread through my body, it is the positive attitude that I maintain, that has helped me to live the normal life I do today.

KATRINA NEWMAN ARTIST 01-06-2017
‘At the bench’ Photo by Yanni

Open Studio & Launch for Australia to the Arctic

Come and join me at my next open studio as I launch my Australia to the Arctic fundraising campaign, to celebrate with friends, donors and clients from 10am to 5pm at 69 Cinerama Crescent McCrae. I’ll be offering light refreshments and an exhibition of current work, plus a door prize of a pair of my lamp-work glass bead earrings to one lucky visitor.

To make a tax deductible donation please visit click here to go straight to my campaign on the Australian Cultural Fund. 

Australia to the Arctic

My  ‘Australia to the Arctic’ fundraising campaign is quickly drawing to its end on the 25 June. Would you please donate to support my participation in the Canadian Wilderness Artists Residency, all donations $2 and over are Tax Deductible.  Please follow this link to make a donation to my project. https://australianculturalfund.org.au/projects/australia-to-the-arctic/

The Australian Cultural Fund is a fundraising platform for Australian artists, it is managed by Creative Partnerships Australia and was established by the Australian Government in 2003 to encourage donations to the arts.  Donations over $2 are tax deductible through the ACF, and supporters get the chance to make a real difference to the work of Australian artists.

I am the first Australian to be selected to participate on the Canadian Wilderness Artist Residency in the Yukon Territory this July and August.  I was chosen from 42 applicants to paddle in sub-arctic Canada 735 kilometres down the Yukon River from Whitehorse to Dawson City, arriving just in time to participate in the Riverside Arts Festival.

Australia to the Arctic Photo
Photo by Sandy Briggs

Canadian Wilderness Artist Residency

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Lake Louise Canada © Katrina Newman

It’s time to celebrate! I’ve been selected for the Canadian Wilderness Artist Residency in the Yukon Territory this August.

I’ve always understood that to create great work or to achieve greatness you will never do it by playing safe, so what better way to work outside my comfort zone than in the wilds of northern Canada.

It’s going to be a wonderful opportunity for me on this adventure, a once in a lifetime experience. I’ll be paddling through the wilderness on the Yukon River; enveloped by the natural beauty of the Canadian fauna, flora, and rugged countryside. Away from the safety of my studio, I’ll be compelled to explore my new environment, the different landscapes, to draw on the new colours & light, the new materials & textures.

Geography has a huge impact on my jewellery. My work has always been heavily influenced by the changing landscapes of my life; in each ring or pendant you can glimpse into the Australian desert, the sea and its shores, and from travels that include West African countries Ghana & Mali. The remoteness & exploration associated with this residency, the time to connect with the people & places will give me the opportunity to keep expanding & challenging my practice.

I’ve started preparing a small selection of tools to take on the adventure, some emery paper, files, and pliers. The adventure concludes at the Riverside Arts Festival in Dawson City where we have the opportunity to share with other artists from Canada and the region.

Last year I visited Canada & travelled from west to east finishing in New Brunswick where I reconnected with a friend that I met 31 years earlier on a station platform in Brussels Railway Station Belgium 1985. I felt a real connection to Canada & its people on this journey; I’m keen to continue to explore this connection as an artist on this residency.

Men’s accessories

Are you looking for style, something unique? Check out my range of men’s accessories including sterling silver arm rings, rings and cufflinks. Buy online or direct from my studio gallery on the Mornington Peninsula.  I welcome custom orders.

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Mountain ring square, arm ring and monogram ring all in sterling silver © Katrina Newman
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Wave ring square and Drifting sands ring in sterling silver © Katrina Newman

A video tour of my studio

 

Open Studio

I’ll be opening my studio this Friday and Saturday from 10am to 5pm, please feel welcome to drop in during these times.  You’ll find me at 69 Cinerama Crescent McCrae on the beautiful Mornington Peninsula.

If you can’t make it and would like to take advantage of my sale on earrings, necklaces and cufflinks please see my shop or send me a message to make another time.

See you soon!

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Sale on now

Visit my Shop for details!

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SALE

My lamp work glass bead necklaces and pendants will be on SALE from Thursday 12 January 2017 until sold out. Buy direct from my studio or online.

 

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Summertime art

If you’re interested in visiting an art gallery or artist studio during your holiday on the Mornington Peninsula, my studio gallery is always open by appointment.  Please give me a call on 0413 304 013 or send me an email katrina@katrinanewman.com to schedule a time. This weekend I’m open from 10 to 5pm each day.